Thursday, 30 August 2007

My New Polls

(polls now closed - for a while you can view them at the bottom of the right hand side of this page)
A I mentioned in the previous post, It's a fiasco every time I call the doctor for a prescription for new meter strips.

First the phone call, which I hate every time. I deal with either the receptionist or the nurse, and I can hear both of them rolling their eyes as I once again ask for a script that allows for 8 - 12 tests a day.

Then I go in to pick up the script, which will without doubt allow for only 3 - 4 tests a day. I complain, ask for it to be re-written, and sometimes it will be, sometimes it wont. Even if I get a replacement script it will still only allow for up to 6 tests a day. I can live with 6 if I have to, but it leaves me guessing my BGs too often, and I feel SO much better (and more in control, and more free to live my life, and more free to do *anything*, etc) if I can test when I need to.

How can it be wrong to test more? Isn't it a good thing? Aren't I a good little patient for having a1cs under 7, testing at good times, keeping an eye on things and attempting to take over the roll of my pancreas?

The good news is that when I see my Endo she will write me out another script, which keeps me stocked up for when the doc wont give me enough. The bad news is that she only wants to see me once a year now because as we both know I'm controlling my own Diabetes and know what I'm doing, so one extra script a year doesn't fill up those gaps any more :(

Well this is yet another fiasco that may be coming to an end. I called the doctor to get strips a few days ago. I went in yesterday to pick up the script which yet again allowed for 3 - 4 tests a day. I left it there with the receptionist and requested an appointment. I would show the Dr the Pharmac Schedule which says a diabetic on insulin can have as many tests as they need. I would print bits out, explain my case, heck I was even willing to cry brittle diabetes if I needed too (which is bull crap... but a gal's gotta do what a gal's gotta do).

FINALLY the good news: The receptionist called me this morning, cancelled my appointment and said that the Dr wrote me a new script for 800 strips following a letter he got from my Endo. I don't know what she said, but I love her now :D

SO - omg I've been a little verbal on this one haven't I? So.... I was wondering how many others have trouble with this. Are you free to test as you need to? Is it a bother, or are you happily testing less? Is your doctor writing out scripts willy nilly allowing you to test as you please? Tick some boxes, and tell me all about it. Especially you NZ'ers - I wonder how common this issue is in NZ.

BTW - it seems blogger's polls don't allow for any more than a word or three per option. If you can't read what's at the end of the line, just hover over it and all will be revealed. Thanks for your votes!

The Accu-Chek Performa Meter Fiasco

We were once excited about the free Performa meter Accu-Chek were sending out to all of us currently using an Advantage meter.

Then, we were a little worried as the meter didn't seem to work as we expected.

Then we discovered that the meter read in Plasma, not whole blood. All very good, but we were a little annoyed that we weren't clearly told about it. Small print isn't enough.

Then we discovered that the supposed 10 - 15% higher readings could be as far off as 10 - 60%, which is nowhere near accurate enough for a diabetic trying to survive day to day.

Roche eventually (but very casually) mentioned that the meters might not be reading as expected, and very quietly mumbled that maybe, if we wanted to, we could use our old meters for a while, only if we weren't happy, and just until they sorted out the strip / chip issue. Although these meters were often reading dangerously outside of range many people are still using them and Roche have barely tried to discourage us. Even the health professionals are confused - one person will tell you to keep using it, it's fine... the next will freak out and insist you kee
p well away from it until they've sorted it.

I for one was not pleased. I'm sure Roche aren't too pleased with how this turned out either! But I no longer play a part in this fiasco! YAY! I gave in to the competitors offers. I have now swapped my Performa meter for an Optium Xceed, and I'm pretty happy with that deal - At least the Xceed has a back-light! (Overseas readers may know it as the Xtra)

I'd encourage others to either do the same, or at least keep using your Advantage meter. The Performa is a recipe for trouble! Even if you're happy with the Performa, are you happy with the way Roche have dealt with the issue? I'm certainly not.

However I'd also like to note that the issue with the Performa seems to be only on some meters (which totally kills their theory of the problem being in the calibration of the strips, doesn't it?). My tests showed a variance of up to 60%, yet my friend's comparisons show a fairly well averaged 15% with only a couple of slightly 'off' readings.

Anyway, here's to my new meter and three cheers to Medica Pacifica for a brilliant deal, and what looks like a brilliant meter. I'm yet to find out, because getting a new prescription for more strips is yet another fiasco I have to go through repeatedly with my doctor, so at this point I have a lovely new meter and NO strips. How it sucks to have a new toy that you can't play with!

In memory

Ted (Draggie) Chapman, passed on August 13th 2007.

A man who helped bring me out of my shell. I'll always remember him and be thankful for the times we shared.

Cheers x x x

Dammit Draggie you still owe me a song!

Hello, world

Just poking my head in to say hi.

I haven't been around much - life has been, well, y'know, life. It got busy... so busy that I... oh I'm fibbing, I just got addicted to other stuff :D Like tudiabetes... and Desktop Tower Defense, and Onslaught.

And then I thought about coming back and saying hello, but you know how it is when you haven't talked to an old friend for a while... where do you start? Do I have to worry about whether I've pissed you off and forgotten about it? Or do I owe you any money?

So lets start with a clean slate, eh?

I have so many things to say, so many posts in draft that need to see the world, so many stories to tell. It's all backed up in my brain and if I don't get it all out I'm going to pop.

However, first things first - I need sleep, it's 2:45am and I've had a very long day, which I shall be sure to tell you about, along with all the others, in due time.

Prepare your eyes - serious post-a-thon coming soon.

Wednesday, 1 August 2007

Pick a reason, any reason...

Because it's good to giggle, I thought I'd share this excellent Diabetes Forums thread with you all:

Crazy reasons why you got diabetes